I’m thrilled to say that tonight went off without a hitch! It went perfectly - no reactions, calm kids, easy dosing, dinner together as a family, playing games, reading books, doing art projects and going to bed with a smile. The revised regimen (per Dr. Nadeau last night) to pre-dose the kids with certain medications worked like a charm, and we are so so relieved. Woohoo!
Things went so smoothly that we worked together on our wishing wall project – our poster where we write all the wishes we have for things we can’t do now, but we want to do once A&A graduate from the study. Among the items that were added tonight: eating anything we want at a birthday party; visiting the Jelly Belly factory; going to sleepovers and eating anything we want; boarding an airplane together; choosing anything we want at a bakery; and going to any restaurant. The poster background may look familiar to you… it’s decorated to look like the Western Wall, in Israel, where people put notes and messages to G-d. We, too, trust that our wishes will be heard, and can’t wait to do them and check them off of our poster, one by one.
I enjoyed reading your blog. My child is allergic to peanuts. One tip in case the doctors didn't already cover it: vigorous exercise or exposure to hot water (like a jacuzzi) before the dose can increase the chance of a reaction. Might want to avoid sofa jumping aerobics, brotherly wrestling matches, or hot baths for an hour before and 2-3 hours after an allergen dose.
ReplyDeleteThough with two boys who like Star Wars, it might be impossible to prevent a random light saber battle from erupting on occasion.